Question: how can i make my community more aware of Kawasaki disease ?
My son was diagnosed with Kawasaki Disease In May of 2011 He made a full recovery after being in the hospital for almost 2 weeks, i’d like to know how i can make my community more aware of the symptoms of Kawasaki Disease or to see if there are any organizations here locally please help thanks.
Answer by Vanessa
I am so glad to hear your son made a full recovery and overcame KD. My daughter had KD in 2007 and she also overcame KD with no complications. I think awareness is so important so I’d like to share some suggestions of some stuff I have done to raise KD awareness.
If you haven’t done so already you can contact the KD foundation and ask them to mail you some posters, then you can contact local pediatrician offices and ask them if they would display the posters in their patient rooms. This, I believe, is where awareness is crucial for seeing the KDF’s poster there with all the signs will help doctors and patients alike more aware of KD.
You can also share your son’s story wherever possible. Contact local newspapers and see if they would like to publish his story, and if you are up to it you can even host a KD related event to raise awareness!
Here are more ideas:
Keep Kawasaki disease posters from the KD Foundation and a roll of tape or tacks handy. Post posters on bulletin boards at your local grocery store, library, places of worship, community centers, beauty and barber shops, gyms, yoga studios and coffee shops. Posters are available for print on the KDF’s website under www.kdfoundation.org and/or may be requested by contacting the KDF at firstname.lastname@example.org
Think of five organizations or community partners in your area who would benefit from learning about Kawasaki disease. Contact those groups to ask if they would be willing to distribute KDF’s educational posters and/or post a link to their web site.
Host a walk for Kawasaki disease in your area and have the funds go towards a diagnostic test. A walk is the simplest way to raise funds for a cause you deeply care for, and can help raise awareness of KD in your community. If you have a Facebook or other social networking page, use your status to update friends about events you’re involved with. Be sure to post specific updates to encourage your friends, family and community to support your efforts.
Contact your parish rectory, synagogue or place of worship to find out if they will include a message in the weekly bulletin or newsletter.
Call your Mayor’s office to find out if they have a department that handles health care issues. Make sure they know that January 26 is KD Awareness Day and ask if they would be willing to help spread the word by posting a link on their web site, including an article in their newsletter or formally declaring January 26 as KD Awareness Day.
If you are affiliated with a hospital or university, let your public relations or media department know January 26 is KD Awareness Day. This is a great opportunity for local media outreach. Ask your hospital or health care center to include an article about Kawasaki Disease Awareness Day in their newsletter and/or on their Web site.
Talk to your human resources department about setting up an educational table about Kawasaki disease at your workplace and/or arranging a specific Kawasaki disease awareness event leading up to a KD fundraiser.
Ask your local library to help showcase Kawasaki Disease Awareness by featuring KDF’s educational materials during the month of January. Find out if the library invites community speakers on different topics.
Scan your daily newspaper for sections that cover health, health observances, calendar events and communities. Is there a section where your story and Kawasaki Disease Awareness fits? Is there an emerging story that you can jump on to place an Op-Ed or interest a reporter in covering the “other side of the story?” Is there a “My Turn” or “Neighbors” section where you can be featured?
If you’re a parent of a KD child or a KD survivor, talk to your physician at your next visit about including information in their waiting room, such as Kawasaki Disease Awareness Day postcards and other printed materials. If you’re a health care professional, talk to your office staff about where to place materials.
You and your child can also participate in the KD genetics study, here is the link http://www-pediatrics.ucsd.edu/Research/Labs/Kawasaki%20Disease/Pages/default.aspx